Family Flowers Only with Craig Coady
22 August - 1 hour 17 mins
Podcast Series
Family Flowers Only by Grief Ireland
This week I sit down with Craig Coady, a father who has faced an extraordinary amount of heartbreak and who is now fighting with everything he has for his son.
Craig speaks about his wife Della, who is living with Huntington’s disease and is now in full-time care, and their two boys, Rory and Paudie, who were both diagnosed with the rare and progressive condition Friedreich’s ataxia. Last year, Craig faced the unimaginable when 13-year-old Rory passed away as a result of the disease.
Today his 16-year-old son Paudie is living with the same condition, and Craig is campaigning for access in Ireland to Skyclarys, the first treatment for Friedreich’s ataxia, which can slow the progression of t...
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