HSE decision on funding the drug for Friedreich’s Ataxia tomorrow
24 August - 5 minsFriedreich’s Ataxia campaigners demonstrated yesterday for the reimbursement of Skyclarys ahead of a HSE decision on funding the drug tomorrow.
Speaking to Anton this morning was Niamh Ní Hoireabhard a journalist from Kildare who was diagnosed with Friedreich’s Ataxia when she was 13.