HSE approves offer on Skyclarys drug for Friedreich's Ataxia patients
25 August - 13 mins
Podcast Series
Lunchtime Live
The HSE today has approved a new offer from drug firm Biogen over ‘Skyclarys’, which will now be available with reimbursement to Friedreich’s Ataxia patients. This comes after mounting pressure, and months of campaigning…
Joining Clare McKenna to discuss this is Teresa Kane, a mother of two children with Friedreich’s Ataxia and Niamh Ní Hoireabhaird, who lives with Friedrich’s Ataxia…
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